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Terry's Foundation: Duchenne Educational Seminar

Terry's Foundation for Muscular Dystrophy is hosting an educational conference on June 24, 2018 for families and individuals impacted by Duchenne muscular dystrophy. The conference will bring families together with experts in the field to talk about clinical developments, standards of care and offer an opportunity to ask questions & learn. The event will offer the opportunity for families to come together and connect. 


AGENDA


Doors Open/Breakfast


8:30AM


Welcome


9:30- 9:45AM


A Clinical and Academic Perspective


10:00 – 11:45AM


Lunch


12:00 – 12:45PM


Industry Therapeutic Developments


1:00 – 2:30PM


Family to Family Sessions


2:45 – 3:45PM


Closing Remarks


4:00PM




SPEAKERS/INDUSTRY EXPERTS


Academic, Clinical & Foundation Experts 


-Brenda Wong MD, MBBS, University of Cincinnati Children's Hospital 


-Louis Kunkel, Ph.D, Boston Children's Hospital 


-Susan Ward, Ph.D, Collaborative Trajectory Analysis Project 


Industry Experts 


-Wave Life Sciences


-Solid Biosciences 


-Pfizer


-Sarepta Therapeutics


-Exonics Therapeutics 


-Capricor Therapeutics




Assistance available for families in need. Please reach out for additional information.