Terry's Foundation: Duchenne Educational Seminar

Terry's Foundation for Muscular Dystrophy is hosting an educational conference on June 24, 2018 for families and individuals impacted by Duchenne muscular dystrophy. The conference will bring families together with experts in the field to talk about clinical developments, standards of care and offer an opportunity to ask questions & learn. The event will offer the opportunity for families to come together and connect. 


Doors Open/Breakfast



9:30- 9:45AM

A Clinical and Academic Perspective

10:00 – 11:45AM


12:00 – 12:45PM

Industry Therapeutic Developments

1:00 – 2:30PM

Family to Family Sessions

2:45 – 3:45PM

Closing Remarks



Academic, Clinical & Foundation Experts 

-Brenda Wong MD, MBBS, University of Cincinnati Children's Hospital 

-Louis Kunkel, Ph.D, Boston Children's Hospital 

-Susan Ward, Ph.D, Collaborative Trajectory Analysis Project 

Industry Experts 

-Wave Life Sciences

-Solid Biosciences 


-Sarepta Therapeutics

-Exonics Therapeutics 

-Capricor Therapeutics

Assistance available for families in need. Please reach out for additional information.